Premature babies are seldom thought or spoken about until it is thrust upon you. It is a world that has existed; a parallel universe yet many of us just are unaware of it. A sheet of tinted glass separates us, the parents of the premmie babies can see out but the general public can’t see in. Until you experience this yourself it hard to imagine what it is like. Many people have asked me “how did you survive” well the truth is you just do. You can’t afford to fall apart or to lose it because you might not be able to get back up again. From the time I saw Airlie I knew that I had to learn how to breath again with her and be strong for her because she needed me!  I remember thinking she depends on all these people now what could I possibly do? I felt like I had failed. I did morne for my lost pregnancy and for some time it does plague you. everywhere you go all you seem to see is happy families with big full term babies. You see pregnant women with beautiful big bellies and some are complaining and you just want to grab them and shake them and say with tears rolling down your face  and say ……
“LOVE THIS TIME …. PLEASE BE GRATEFUL THAT YOU HAVE THIS AT ALL”

In time  I have learned to deal with what has happened. You do the WHAT IF speech a thousand times in your head and in the end you just get no where because there is no way she will ever be full term. There was nothing I could have done to stop the pre eclampsia. Maybe if I knew about pre eclampsia I would have seen the signs and she could have possibly been given longer but again all things I will never know. I do know how ever that she is an amazing little girl and that we have meet amazing people over the past 21months. These people would not have been brought into our lives and I would defiantly not be where I am today.  Being born premmie , in our case being born at 27weeks is not ideal but for some people as it was for us its was a life or death situation.  For me now it is very important to support those who are going through this. Providing them with this website allows them a little control. The information is never intended to replace your doctor form a relationship with them and use them for every ounce of their education and years spent treating babies like yours. I would move heaven and earth if I could provide everyone with education about pre eclampsia and HELLP Sydrome.  There are many reasons for prematue birth and we need to learn them all. I have the personal link with PE and HELLPS so I chose to try to reach and out and help others hoping they become informed because we should not have to suffer from the silent hand of these conditions to have to be told their names.  I also think support groups for families who go through the NICU need to be in abundance. I am so passionate about this I have chose to set up a support group on the Central Coast of NSW. Babies in this region are born at level2 nurseries @34 weeks. If your baby is born before this you are transfered out of the area either before or just after the baby has been born. Most of the NICU’s are filled with people from all over the state so you very rarely share with someone from your local area. I felt it was time to set up something here on the coast because meeting with those who truly understand you can help the healing process.  We will be meeting the last Wednesday of the month with our first meet on the 26th of September. If you would like to find out more about the Support group please fill in the contact form and I will let you know the full details.