Comments for Moment by Moment - A Journey Of A Premature Baby http://momentbymoment.com.au Premmie Baby News Fri, 04 Nov 2011 05:34:50 +0000 hourly 1 http://wordpress.org/?v=3.3 Comment on My Amazing Airlie Fae – Premmie Baby Girl born at 27 Weeks by Fiona Dixon http://momentbymoment.com.au/2009/10/27/my-amazing-airlie-fae-premmie-baby-girl-born-at-27-weeks/comment-page-1/#comment-1254 Fiona Dixon Fri, 04 Nov 2011 05:34:50 +0000 http://momentbymoment.com.au/blog/?p=863#comment-1254 Jan I am so very sorry that baby Brody lost his battle. The NICU is such an inspiring yet sad place. I really want to thank you for being such a wonderful lady. I am really touched that you took the time to read my stories that I share. I want to send lots of love to yourself, Kellie, Mark, Connah and all your extended family and friends. If I can do anything at all to help or you are looking for support please let me know and I will see what I can find out about your region. I have to say your name sounds very familiar but I am not sure why? I did live in Dubbo for 5 years with my husband and son back in the early 2000's so maybe we have actually met before? Thank you again for taking the time to leave these comments I truly appreciate your words and want you to know I have thought of you many times. Love Fiona xx Jan I am so very sorry that baby Brody lost his battle. The NICU is such an inspiring yet sad place. I really want to thank you for being such a wonderful lady. I am really touched that you took the time to read my stories that I share. I want to send lots of love to yourself, Kellie, Mark, Connah and all your extended family and friends. If I can do anything at all to help or you are looking for support please let me know and I will see what I can find out about your region. I have to say your name sounds very familiar but I am not sure why? I did live in Dubbo for 5 years with my husband and son back in the early 2000′s so maybe we have actually met before? Thank you again for taking the time to leave these comments I truly appreciate your words and want you to know I have thought of you many times. Love Fiona xx

]]> Comment on Maddie Sophr by Lyrics lrc http://momentbymoment.com.au/2009/04/27/maddie-sophr/comment-page-1/#comment-1253 Lyrics lrc Wed, 26 Oct 2011 17:03:32 +0000 http://momentbymoment.com.au/blog/?p=293#comment-1253 <strong>Lyrics lrc...</strong> [...]Maddie Sophr | Moment by Moment - A Journey Of A Premature Baby[...]... Lyrics lrc…

[...]Maddie Sophr | Moment by Moment – A Journey Of A Premature Baby[...]…

]]> Comment on My Amazing Airlie Fae – Premmie Baby Girl born at 27 Weeks by Jan Matterson http://momentbymoment.com.au/2009/10/27/my-amazing-airlie-fae-premmie-baby-girl-born-at-27-weeks/comment-page-1/#comment-1252 Jan Matterson Fri, 16 Sep 2011 07:02:45 +0000 http://momentbymoment.com.au/blog/?p=863#comment-1252 Hi Fiona, After writing to you 24 August 2011, little Brody lost his battle for life on 7th September 2011. He was 42 days old and he showed such fighting spirit right until the very end. Brody died from an unrelated premature illness which was a bowel condition called Volvulus, ( twisted bowel). The condition didn't become apparent until he became so sick and Brody's surgical team did a life saving operation. Sadly little Brody didn't make it through the surgery because all of his bowel had died and there was nothing more his surgical team could do for him. Kellie and Mark never gave up on their little man. They wanted Brody to tell them when enough was enough and that is when Kellie and Mark decided to turn the life support off. We can never ever repay or thank all his medical team both at RPA and Royal Womens hospital at Randwick enough for all they did for little Brody and the love and support they gave to Kellie and Mark throughout Brody's treatment. Absolutely amazing people!! Kellie and Mark are just as amazing. We had the most beautiful celebration of Brody's journey of his short life on Wednesday 14th September 2011. His mummy got up at his funeral to introduce little Brody to the many friends and family and also to say goodbye to their little hero. Kellie did that with so much pride, love, strength and dignity in spite of their own agony of losing their little man. Brody will live in our hearts forever !! Your foundation has given many parents the courage faith and hope to help many parents get through the most difficult times that they face having a premature baby. Kind regards Jan Again Fiona , thank you for being such an inspiration. Hi Fiona,
After writing to you 24 August 2011, little Brody lost his battle for life on 7th September 2011. He was 42 days old and he showed such fighting spirit right until the very end. Brody died from an unrelated premature illness which was a bowel condition called Volvulus, ( twisted bowel). The condition didn’t become apparent until he became so sick and Brody’s surgical team did a life saving operation. Sadly little Brody didn’t make it through the surgery because all of his bowel had died and there was nothing more his surgical team could do for him. Kellie and Mark never gave up on their little man. They wanted Brody to tell them when enough was enough and that is when Kellie and Mark decided to turn the life support off. We can never ever repay or thank all his medical team both at RPA and Royal Womens hospital at Randwick enough for all they did for little Brody and the love and support they gave to Kellie and Mark throughout Brody’s treatment. Absolutely amazing people!!
Kellie and Mark are just as amazing. We had the most beautiful celebration of Brody’s journey of his short life on Wednesday 14th September 2011. His mummy got up at his funeral to introduce little Brody to the many friends and family and also to say goodbye to their little hero. Kellie did that with so much pride, love, strength and dignity in spite of their own agony of losing their little man. Brody will live in our hearts forever
!!
Your foundation has given many parents the courage faith and hope to help many parents get through the most difficult times that they face having a premature baby.
Kind regards Jan
Again Fiona , thank you for being such an inspiration.

]]> Comment on Don’t Judge A Book By Its Cover Or A Premmie Baby By Its Weight ! by Amanda http://momentbymoment.com.au/2007/10/17/don%e2%80%99t-judge-a-book-by-its-cover-or-a-premature-baby-by-its-weight/comment-page-1/#comment-1245 Amanda Wed, 24 Aug 2011 11:04:06 +0000 http://momentbymoment.com.au/blog/?p=180#comment-1245 Hi there :-) My grand daughter is 2 weeks old today born 17 weeks early in New Zealand NICU, my daughter and her partner were told when they first arrived at the hospital via ambulance that when their baby arrived that they would not help her as they didnt not believe in saving under 24 week babies and they would give her a basket to put their dead baby in once she has died ( she was still moving inside and still had a strong heart beat )....you can imagine the horror that my daughter and her partner felt, as this was a baby they had tried to conceive for 6 months and was a planned baby, we fought the system for something to be done, the doctors relented and airlifted my daughter to auckland where again she was told that when baby was born they would not help her survive....my daughter by her scan date was 23 weeks and 0 days, she was 7cm dialated, babies feet where dangling through the cervix and also her membranes, but they were intacted, my daughter went through 4 days of labour refusing to push to make her 23 weeks and 4 days, i questioned the scan date, surely they maybe a question of error by a couple of days???? come on telling me that a couple of days are all that matters in actuallly trying to save a babies life??? I will also mention that her heat beat remained throughout all this at 157-160, she moved consistantly, my daughter placenta was attached just below her tummy button, and she had ruptured it due to a near fall, she also had E-coli present in her urine, we finally got a pedeatrician to agree that if our little girl was born in a good condition they would do everything they could to try and save her as long as it didnt comprimise quality rather than quanity of life, finally we had hope, we were told that if my daughter could hold on until Wednesday, 10th August 7.00am they would save their baby, and at 1.55pm our darling grand daughter entered this world feet first, curled up still in her sack, in great condition, she cried and was breathing, yes we do realise that we have a long road ahead, but all we wanted was for this little girl to be at least given a chance, to be told...your young you can have more children, and sorry but when you have this baby we will put her on your chest to die, she will proberly take 4 - 6 hours to die but she will die, how cruel is this!!!! We have had one bad day, she had 3 infections on day 13, she is responding well to antibiotics,and yes we are well aware that we will have more bad days we remain positive that this darling little girl who has fought so hard to be here will continue to do just that. Ronald McDonald House have been wonderful with accomadation and being close to baby which we are still blown away with, and enabling me to stay every weekend so i can be close for support, whats worrying is apart from us parents( grand parents) ( we live 3 hrs drive away) they have no support?? Hi there :-)

My grand daughter is 2 weeks old today born 17 weeks early in New Zealand NICU, my daughter and her partner were told when they first arrived at the hospital via ambulance that when their baby arrived that they would not help her as they didnt not believe in saving under 24 week babies and they would give her a basket to put their dead baby in once she has died ( she was still moving inside and still had a strong heart beat )….you can imagine the horror that my daughter and her partner felt, as this was a baby they had tried to conceive for 6 months and was a planned baby, we fought the system for something to be done, the doctors relented and airlifted my daughter to auckland where again she was told that when baby was born they would not help her survive….my daughter by her scan date was 23 weeks and 0 days, she was 7cm dialated, babies feet where dangling through the cervix and also her membranes, but they were intacted, my daughter went through 4 days of labour refusing to push to make her 23 weeks and 4 days, i questioned the scan date, surely they maybe a question of error by a couple of days???? come on telling me that a couple of days are all that matters in actuallly trying to save a babies life??? I will also mention that her heat beat remained throughout all this at 157-160, she moved consistantly, my daughter placenta was attached just below her tummy button, and she had ruptured it due to a near fall, she also had E-coli present in her urine, we finally got a pedeatrician to agree that if our little girl was born in a good condition they would do everything they could to try and save her as long as it didnt comprimise quality rather than quanity of life, finally we had hope, we were told that if my daughter could hold on until Wednesday, 10th August 7.00am they would save their baby, and at 1.55pm our darling grand daughter entered this world feet first, curled up still in her sack, in great condition, she cried and was breathing, yes we do realise that we have a long road ahead, but all we wanted was for this little girl to be at least given a chance, to be told…your young you can have more children, and sorry but when you have this baby we will put her on your chest to die, she will proberly take 4 – 6 hours to die but she will die, how cruel is this!!!! We have had one bad day, she had 3 infections on day 13, she is responding well to antibiotics,and yes we are well aware that we will have more bad days we remain positive that this darling little girl who has fought so hard to be here will continue to do just that. Ronald McDonald House have been wonderful with accomadation and being close to baby which we are still blown away with, and enabling me to stay every weekend so i can be close for support, whats worrying is apart from us parents( grand parents) ( we live 3 hrs drive away) they have no support??

]]> Comment on My Amazing Airlie Fae – Premmie Baby Girl born at 27 Weeks by Jan Matterson http://momentbymoment.com.au/2009/10/27/my-amazing-airlie-fae-premmie-baby-girl-born-at-27-weeks/comment-page-1/#comment-1244 Jan Matterson Wed, 24 Aug 2011 03:36:01 +0000 http://momentbymoment.com.au/blog/?p=863#comment-1244 Hi Fiona, thank you, your long journey and life experience with your tiny little girl that you have shared surely has been inspiring for so many parents going through the same thing. I think it's wonderful support for those parents experiencing that rollercoaster of emotion of milestones and then the setbacks, predominantly these tiny prem babies are vulnerable to due to immaturity of their organs etc. A mutual friend actually sent me your website because on 27 July 2011, my daughter gave birth to my tiny grandson Brody and he was born at 26 weeks. He is such a little fighter and he has faced many obstacles with infections, lung, heart problems and latest as of last night was a blood transfusion. Still waiting to hear results of his kidney scan as he had depleted sodium levels. My daughter and her partner have endured that rollercoaster with little Brody. Yesterday morning they were celebrating Brody reaching the kilo club and then finding out he needed the transfusion. It's very difficult also as they are from Dubbo and have a beautiful 21 month old litlle boy Connah that they miss very much and are fretful. Connah also misses them too and his other grandparents and I are sharing his care. We have been to Sydney twice since Brody's birth and the goodbyes are very traumatic for Kellie Mark and little Connah. We are all trying to support them as much as we can but I am sure like you Kellie and Mark are getting lots of support from other parents and whole NICU team at RPA. They have been very caring. Amazing people, as you say we call strangers. I actually know what you all have been through as I also had a premmie baby girl and she was full of spirit and fought for her survival against all odds. That little girl today is now 27 years old and has 2 children of her own. The support my husband Erin and I received at John Spence NICU was wonderful and we owe Erin's survival to them and will never forget them. Once Erin was finally released and we went home Erin spent her first 18 months in and out of hospital with lung problems and she had failure to thrive, eye and ear issues. I ended up having post natal depression and there was no support out there to help with all these premmie baby issues. Thank you for sharing your experience Fiona. I was wondering if there is a support network for premmie babies here in Dubbo as little Brody will face many obstacles after his release as he has chronic lung disease which means he will eventually come home with his own little oxygen tank. I think Kellie and Mark will need all support they can get. Could you please let me know if that support is available. God bless you Fiona Airlie and your family Jan xx Hi Fiona, thank you, your long journey and life experience with your tiny little girl that you have shared surely has been inspiring for so many parents going through the same thing. I think it’s wonderful support for those parents experiencing that rollercoaster of emotion of milestones and then the setbacks, predominantly these tiny prem babies are vulnerable to due to immaturity of their organs etc. A mutual friend actually sent me your website because on 27 July 2011, my daughter gave birth to my tiny grandson Brody and he was born at 26 weeks. He is such a little fighter and he has faced many obstacles with infections, lung, heart problems and latest as of last night was a blood transfusion. Still waiting to hear results of his kidney scan as he had depleted sodium levels. My daughter and her partner have endured that rollercoaster with little Brody. Yesterday morning they were celebrating Brody reaching the kilo club and then finding out he needed the transfusion. It’s very difficult also as they are from Dubbo and have a beautiful 21 month old litlle boy Connah that they miss very much and are fretful. Connah also misses them too and his other grandparents and I are sharing his care. We have been to Sydney twice since Brody’s birth and the goodbyes are very traumatic for Kellie Mark and little Connah. We are all trying to support them as much as we can but I am sure like you Kellie and Mark are getting lots of support from other parents and whole NICU team at RPA. They have been very caring. Amazing people, as you say we call strangers. I actually know what you all have been through as I also had a premmie baby girl and she was full of spirit and fought for her survival against all odds. That little girl today is now 27 years old and has 2 children of her own. The support my husband Erin and I received at John Spence NICU was wonderful and we owe Erin’s survival to them and will never forget them. Once Erin was finally released and we went home Erin spent her first 18 months in and out of hospital with lung problems and she had failure to thrive, eye and ear issues. I ended up having post natal depression and there was no support out there to help with all these premmie baby issues. Thank you for sharing your experience Fiona. I was wondering if there is a support network for premmie babies here in Dubbo as little Brody will face many obstacles after his release as he has chronic lung disease which means he will eventually come home with his own little oxygen tank. I think Kellie and Mark will need all support they can get. Could you please let me know if that support is available. God bless you Fiona Airlie and your family Jan xx

]]> Comment on Asthma increases risk of premature birth, pre eclampsia & low birth weight. by Fiona Dixon http://momentbymoment.com.au/2011/08/12/asthma-increases-risk-of-premature-birth-pre-eclampsia-low-birth-weight/comment-page-1/#comment-1237 Fiona Dixon Sat, 13 Aug 2011 02:09:50 +0000 http://momentbymoment.com.au/?p=971#comment-1237 Hi Tracy, Thanks for your comment. It is interesting what happens to our body, pre existing conditions and then conditions we experience during pregnancy and after. I experienced pre eclampsia and HELLP Syndrome with my 2nd and Toxemia with my 1st but I don't have asthma. Were you still taking the steroids during the pregnancy? Interesting stuff! Hi Tracy, Thanks for your comment. It is interesting what happens to our body, pre existing conditions and then conditions we experience during pregnancy and after.
I experienced pre eclampsia and HELLP Syndrome with my 2nd and Toxemia with my 1st but I don’t have asthma. Were you still taking the steroids during the pregnancy?
Interesting stuff!

]]> Comment on Asthma increases risk of premature birth, pre eclampsia & low birth weight. by Tracy http://momentbymoment.com.au/2011/08/12/asthma-increases-risk-of-premature-birth-pre-eclampsia-low-birth-weight/comment-page-1/#comment-1236 Tracy Fri, 12 Aug 2011 08:13:55 +0000 http://momentbymoment.com.au/?p=971#comment-1236 I actually had relief from my asthma during my pregnancies and my boys were born 8.8 and 7.13. in between my pregnancies I was on steriroids to control my asthma but during I had no attacks whatsoever. since my last pregnancy, my asthma is bsck I actually had relief from my asthma during my pregnancies and my boys were born 8.8 and 7.13. in between my pregnancies I was on steriroids to control my asthma but during I had no attacks whatsoever. since my last pregnancy, my asthma is bsck

]]> Comment on New Beginnings by Stace http://momentbymoment.com.au/2011/07/23/new-beginnings/comment-page-1/#comment-1235 Stace Thu, 28 Jul 2011 11:37:19 +0000 http://momentbymoment.com.au/?p=941#comment-1235 Welcome to Melbourne :) Welcome to Melbourne :)

]]> Comment on Don’t Judge A Book By Its Cover Or A Premmie Baby By Its Weight ! by Fiona Dixon http://momentbymoment.com.au/2007/10/17/don%e2%80%99t-judge-a-book-by-its-cover-or-a-premature-baby-by-its-weight/comment-page-1/#comment-1234 Fiona Dixon Sat, 23 Jul 2011 12:06:18 +0000 http://momentbymoment.com.au/blog/?p=180#comment-1234 Hi Steve I am in contact with the Elora's Mum and I might feature them in a story...watch this space! Hi Steve I am in contact with the Elora’s Mum and I might feature them in a story…watch this space!

]]> Comment on A Premmie Mum’s Thoughts by Fiona Dixon http://momentbymoment.com.au/2007/09/02/a-journey-of-a-premature-baby/comment-page-1/#comment-1233 Fiona Dixon Sat, 23 Jul 2011 12:00:27 +0000 http://momentbymoment.com.au/blog/?p=167#comment-1233 Hi Helen thanks for leaving a message for all the Mums and Grandmothers out there with premmies in their lives. I hope that your gorgeous grandaughter Olivia is doing well. Sounds like your daughter and I may have had some similar experiences with I also having a 27weeker due to PE but I also had HELLP Syndrome as well. I also had a daughter and her name is Airlie Fae who is now 5 years old. Everyone has their own road to walk in NICU and no one has it easier or harder we all just experience things. Take Care and I would love to hear how you guys are going. Fee xx Hi Helen thanks for leaving a message for all the Mums and Grandmothers out there with premmies in their lives. I hope that your gorgeous grandaughter Olivia is doing well. Sounds like your daughter and I may have had some similar experiences with I also having a 27weeker due to PE but I also had HELLP Syndrome as well. I also had a daughter and her name is Airlie Fae who is now 5 years old. Everyone has their own road to walk in NICU and no one has it easier or harder we all just experience things. Take Care and I would love to hear how you guys are going. Fee xx

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